![]() Incompatible with life but not with loveĪnencephaly, a fatal fetal anomaly in pregnancy, is devastating for parents and termination is often considered best management. Only 42% of perinatal deaths could be classified as a fatal fetal anomaly in accordance with the Health (Regulation of Termination of Pregnancy) Bill 2018 highlighting the complexity of these cases/multiorgan system anomalies.Īnencephaly the maternal experience of continuing with the pregnancy. The incidence of fatal fetal anomalies associated with perinatal mortality in Ireland Neonatal death, Pregnancy loss, StillbirthĮducation priorities for voluntary organisations supporting parents experiencing perinatal loss: a Delphi surveyĪ standardised approach is necessary to develop an education day that is responsive to the learning needs of volunteers supporting bereaved parents. The implementation of termination services for fatal fetal anomaly is complex, challenging and requires institutional support. However, there is a need for education and collaborative working between health care professionals and volunteers to assist them in supporting bereaved parents.Įxperience, Fatal fetal anomaly, Staff support, Termination of pregnancyįetal medicine specialist experiences of providing a new service of termination of pregnancy for fatal fetal anomaly: a qualitative study Volunteers feel comfortable in their peer support role to bereaved parents. ![]() Healthcare professionals need to analyse information available to the public and engage in media literacy and to develop these skills in their patients.īereavement care, Experience, Fatal fetal anomalyĮxperiences of volunteers supporting parents following a fatal fetal anomaly diagnosis There are significant misrepresentations in the information being delivered to the public on fatal fetal anomalies. Models of planning & care are provided to provide optimum comfort for the baby, mother & family.Īwareness / Knowledge, Fatal fetal anomaly, Perinatal palliative care, Termination of pregnancyĬritical discourse analysis on the influence of media commentary on fatal fetal anomaly in Ireland Perinatal Palliative Care provides for optimal holistic care of a baby and family following a life-limiting diagnosis. ![]() This study reinforces the need for routine scanning of all pregnancies in the first trimester.īereavement care, Fatal fetal anomaly, Perinatal palliative care, Termination of pregnancy for fetal anomaliesīirth When Life is Short – a short summary of the positive trajectory of the development of bereavement care in pregnancy loss in Ireland.īereavement care, Perinatal palliative care These factors are the basis of antenatal care. A palliative care approach & comprehensive bereavement care is proposed for all babies diagnosed with a life-limiting condition.ĭating ultrasounds are fundamental to modern obstetric careĭating ultrasounds confirm viability, pregnancy number and due date. For some, the most compassionate approach will include termination. Parents are faced with complex ethical decisions following a diagnosis of FFA. ![]() Perinatal death: Complex and nuanced life, love and loss Miscarriage, Perinatal palliative care, Pregnancy loss, Spirituality, Stillbirth, Termination of pregnancy, Termination of pregnancy for fetal anomalies Parents with a diagnosis of fatal fetal anomaly need consistent, well communicated, and comprehensive care, which encourages an individualised perinatal palliative care approach to meet parental needs. Following confirmation of a FFA prenatally, parents are faced with decisions concerning the remainder of the pregnancy, giving birth and seeing their new-born baby, or choosing termination of pregnancy.įatal fetal anomaly, Perinatal palliative care, Termination of pregnancy for fetal anomaliesįatal fetal anomaly: Exploring experiences of women and their partners The Eight Amendment prevented termination of pregnancy for FFA in Ireland prior to repeal and the subsequent enactment of the Health (Regulation of Termination of Pregnancy) Act, 2018, legalised termination of pregnancy in Ireland for the first time. While FFA is not a medical term, it gained popularity in Ireland during its use in the political campaigns to repeal the Eighth Amendment of the Irish Constitution. The term fatal fetal anomaly (FFA) is used to describe anomalies that will lead to fetal or neonatal death and is used interchangeably with lethal and life-limiting terms. A proportion of these anomalies will be lethal or fatal, and congenital anomalies remain the leading cause of fetal death and child mortality. Approximately 2% of pregnancies are diagnosed with a congenital anomaly each year.
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